Toxic Shock Syndrome Survivor Lauren Wasser Posts Update One Year Since Her Second Leg Amputation

Lauren Wasser is speaking out again about losing both her legs to toxic shock syndrome.

Six years ago, the model and activist lost her right leg — and nearly her life — when she contracted toxic shock syndrome, a rare complication of bacterial infections associated with tampon use.

Though she initially fought to keep her left leg, which was also severely damaged as a result of the infection, Wasser decided to have it amputated in January of 2018.

On the anniversary of her second amputation, Wasser, 30, posted an empowering message on Instagram.

“A tampon almost killed me,” she wrote. “I was using the product as I should. I got away with my life with a 1 % chance of survival let alone a life worth living. Actually surviving was the easy part it was waking up to nightmare that was ahead.”

View this post on Instagram

A tampon almost killed me. I was using the product as I should. I got away with my life with a 1 % chance of survival let alone a life worth living. Actually surviving was the easy part it was waking up to nightmare that was ahead. My right leg was damaged beyond repair and gangrene had set in and was moving fast. Drs gave me no choice but to lose my right leg. My left foot was the issue. Drs told my family and I that I should amputate both legs at the same time below the knee because my left foot had a 50/50 chance of being functional. I would have no toes and my heel was still in question if it was actually going close. nothing on this planet is as precious as your feet. They have just enough fat pads in areas that take a beating for everyone to do anything and everything but without that it’s almost impossible to just walk. You can’t just get a normal skin graph or transplant because that tough skin doesn’t exist. That’s why my only option was Apligraf.(baby foreskin) after being in a wheelchair for 8 months with my foot in a vac and hyperbaric chamber visits for hours on end my heel actually closed. That being said I had it for 6 years with no toes. Because I was so young my body was trying to fix the damage and creating way too much calcium in which my bones in my foot would grow almost like toes. But I was walking on that everyday. Skin and bone. It was like walking on pebbles and rocks. Every step was hard and everything I did I had to mentally fight through because the physical pain was insane. I honestly can say I wouldn’t be alive had I amputated at the same time. It would have been too much for me. Losing one leg was traumatic enough. I learned a lot through trial and error with becoming an amputee. Which systems worked which feet I liked and becoming one with it. It took a long time for me to accept it. The first year I hid myself in hoodies and baggy sweats trying to not exist. I contemplated suicide. I have been through it all. Today marks one year since letting go of my left leg and gaining my life back. I really feel like the 24 year old girl before all this happened. I am now training for the @nycmarathon 2019 #???????? ???????????????????????????????????????????

A post shared by Lauren Wasser (@theimpossiblemuse) on Jan 11, 2019 at 12:56pm PST

Wasser continued, recalling living with only one leg after having her right leg amputated in 2012. “Every step was hard and everything I did I had to mentally fight through because the physical pain was insane,” she wrote. “I honestly can say I wouldn’t be alive had I amputated at the same time. It would have been too much for me. Losing one leg was traumatic enough.”

“The first year I hid myself in hoodies and baggy sweats trying to not exist. I contemplated suicide. I have been through it all. Today marks one year since letting go of my left leg and gaining my life back. I really feel like the 24-year-old girl before all this happened,” Wasser finished, adding at the end that she is now training for the 2019 New York City Marathon.

RELATED: Toxic Shock Syndrome Survivor Lauren Wasser Explains Why She Was ‘Ready’ to Amputate Her Second Leg

In March, two months after the second amputation, Wasser opened up to PEOPLE about her new life as a double amputee.

“I was ready,” Wasser told PEOPLE. “For five years of my life I was just getting by — every day was painful. I couldn’t wear heels, I couldn’t run and I could only walk for like 20 minutes. That’s not living.”

Lauren Wasser
Lauren Wasser

“The other day I realized I wasn’t in pain for the first time in five years,” she added. “It hit me and I was like, ‘Wow, I’m okay. I feel normal, I feel good. I feel like what everyone feels like. That was freedom in itself. That was the excitement, and that was what I had hoped for. Doing this amputation was getting rid of that pain and that suffering that I was dealing with and I was hiding.”

RELATED: Model Lauren Wasser on Second Leg Amputation: ‘It’s a Hard Decision, But My Only Way to Freedom’

“I’m ready to just flourish, travel, jump in the ocean and just be a normal human being,” she continued. “My 20’s were pretty painful. I think getting rid of my leg was getting rid of the past and getting ready for my journey ahead.”