Heather Von St. James was diagnosed with malignant pleural mesothelioma, a cancer of the lining of the lungs, not long after her daughter was born in 2005. She only gained five pounds during her pregnancy and noticed she lost weight “really quick” afterward. “I was so tired,” she says.
“I went to my basement to get laundry and, halfway up the stairs, I could barely breathe,” she explains. Then, I went and sat on the couch and I passed out.”
Von St. James says she called her doctor “right away,” who did an X-ray of her lungs. Then, she was given her diagnosis. She was told that she had just 15 months to live if she didn’t receive treatment.
Mesothelioma is often caused by exposure to asbestos, a heat-resistant mineral that has been used in a variety of construction materials for insulation. Von St. James says her doctor asked if her dad ever worked in construction or mining of any sort. “I said, ‘Well, yeah. He did both,’” she recalls.
“I remembered I would wear his jacket and his jacket was covered in this grayish, whitish dust,” says Von St. James. “I would wear it when I had to go feed my rabbits, or rake the leaves or something because it was already dirty and it was my dad’s coat. It’s this coat covered in asbestos that led to my mesothelioma 30 years later.”
“If I didn’t do anything, I was only going to live 15 months.”
Von St. James was given a tough decision. “If I didn’t do anything, I was only going to live 15 months, which I was not going to take as an answer,” she says. Her other option: To have a groundbreaking surgery— “one of the most invasive surgeries there is,” she says. It involved removing her entire left lung, the lining of her heart, the left half of her diaphragm and one of her ribs. She decided to have the surgery.
“The recovery was brutal because I had to follow up surgery with chemotherapy and radiation,” Von St. James says. She also had to learn to breathe with just one lung. “Having one lung, your breathing capacity is literally cut in half,” she explains. “People often ask me how long before everything is back to normal and I’m like, ‘Never.’ You have to adjust your entire way of life after a cancer diagnosis.”
The median survival rate for people with pleural mesothelioma is 18 months, “so to make it even five years is a big deal,” Von St. James says. It’s been 14 years since her diagnosis, which is “kind of unheard of.” That’s why she says “it’s so important that I talk about it to bring awareness to the disease and offer hope to people who are newly diagnosed.”