Award will support education in patient-centered outcomes research and emerging pediatric eczema therapies
NOVATO, Calif., Jan. 19, 2022 /PRNewswire/ -- The National Eczema Association (NEA) and the Pediatric Dermatology Research Alliance (PeDRA) have been approved for a $250,000 funding award through the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute. The award will support a project titled "Making it Count: Using Gamification to Enhance Childhood Eczema PCOR and CER". Working as equal partners, NEA and PeDRA will launch a series of virtual and in-person activities to drive education and engagement of patients, families, and researchers around the management of childhood eczema and the conduct of meaningful patient-centered outcomes research and comparative effectiveness research.
Nearly 10 million U.S. children under the age of 18 are affected by eczema, with one-third affected by moderate-to-severe disease. Despite recent therapeutic advances, the burdens on these patients and their families can be significant, and many important research questions remain unanswered. The already strong partnership between NEA and PeDRA has evolved as activities in the field have increased and, in addition to the award from PCORI, includes the co-funded Childhood Eczema Challenge Grant, which is entering its third annual cycle in 2022.
The PCORI Engagement Award will be run under the direction of Co-Project Lead and PeDRA Executive Director Michael Siegel, PhD and Co-Project Lead and NEA VP of Scientific and Clinical Affairs Wendy Smith Begolka, MBS. Over the course of the two-year award period, NEA and PeDRA will collaborate on a novel virtual educational curriculum directed at a diverse stakeholder audience and gamified approach to learner engagement. It will include real-world activities at the planned in-person Eczema Expo and PeDRA Annual Conference, and virtual education using the NEA Research Ambassador platform and PeDRA Research App.
"We are so excited to be embarking on this important project with PeDRA and grateful for the support from PCORI," said Julie Block, president and CEO of NEA. "The project will be carried out at an opportune time, as the list of FDA-approved eczema treatments is growing, and the need for research to support informed decision-making and direct future research investments is becoming increasingly important."
Near-term goals of the award include increasing competence in patient-centered outcomes research and knowledge of emerging pediatric eczema therapies for the patient and researcher communities. The project's long-term goal is to influence research that supports shared decision-making for patients and health care providers and to improve quality of life and long-term health outcomes for patients. In pursuing these goals, the award directly furthers the missions and strategic priorities of both NEA and PeDRA.
For more information on the PCORI Engagement Award, visit https://www.pcori.org/research-results/2021/making-it-count-using-gamification-enhance-childhood-eczema-pcor-and-cer. This project and the other projects approved for funding by the PCORI Engagement Award Program were selected through a highly competitive review process in which applications were assessed for their ability to meet PCORI's engagement goals and objectives, as well as program criteria.
About the National Eczema Association (NEA)
Founded in 1988, NEA is the largest, 501(c)(3) non-profit, US patient advocacy organization serving people affected by eczema. NEA is the driving force for an eczema community fueled by knowledge, strengthened through collective action and propelled by the promise for a better future. For more on NEA, visit https://nationalecezma.org
About the Pediatric Dermatology Research Alliance (PeDRA)
Formed in 2012, the Pediatric Dermatology Research Alliance (PeDRA) is a nonprofit research organization that includes more than 550 members and supports vibrant research and educational programs. PeDRA's mission is to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease. For more on PeDRA, visit https://pedraresearch.org.
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SOURCE National Eczema Association