Dec. 4—LIMA — Elaina is raising four kids. She and two of her sons have a hereditary disease, Charcot Marie Tooth disorder.
Charcot — Marie — Tooth disease (CMT) is a hereditary motor and sensory neuropathy of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. There is no known cure. Care focuses on maintaining function. CMT was previously classified as a subtype of muscular dystrophy.
So life has thrown her a curve ball. She deals with it.
The four kids are ages 12, 10, 8, and 6. The 10-year-old contracted pneumonia and was treated in Toledo. He now is using a BiPAP machine and oxygen at night. It has taken a while for him to get adjusted to the machine. He now knows how to turn on the machine and put it on by himself. But he is sleeping on the couch for the time being. Elaina, whose bedroom is downstairs, needs to hear whether the machine is working correctly.
Elaina, her youngest and her eight-year-old have CMT. It limits her ability to go upstairs to the three upstairs bedrooms. So when the laundry is done, each child has a basket of clothes that is their responsibility to put away. It's not an ideal plan, but she deals with it.
Elaina says that all the kids need clothes: "They've grown like crazy." Her daughter, who is 12, is wearing adult medium for shirts and prefers leggings or sweatpants that are also adult medium. The 10-year-old prefers sweatpants as well. "I can't get him to put jeans on for nothing!" His size is a 14/16. He also has a need for underwear. The eight-year-old is in a 10/12 and the six-year-old is also in a 10/12 for both pants and shirts.
The daughter would like craft items. The 10-year-old found an LED light at the Dollar Store so anything that lights up would be good for him. He also likes to do hands-on things, so anything that he could put together would be great. The eight-year-old is obsessed with basketball and football right now. The six-year-old loves Paw Patrol.
Elaina's youngest is currently being tested for autism. Yet another curve thrown in her life. But she is dealing with it.
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