Photo: Paul Daugherty
It is the afternoon of your wedding. June 27, 2015. In two hours, you will take the walk of a lifetime, a stroll made more memorable by what you’ve achieved to get to this day. I don’t know what the odds are of a woman born with Down syndrome marrying the love of her life. I only know you’ve beaten them.
You are upstairs now, making final preparations with your mom and bridesmaids. Your hair is coiled perfectly above your slender neck. Your bejeweled dress – “my bling,’’ you called it – attracts every glimmer of late afternoon sunshine pouring through the window. Your makeup – that red lipstick! – somehow improves upon a beauty that has grown since the day you were born. Your smile is blooming and everlasting.
I am outside, beneath the window, staring up. We live for moments such as these, when hopes and dreams intersect at a sweet spot in time. When everything we’ve always imagined arrives and assumes a perfect clarity. Bliss is possible. I know this now, standing beneath that window.
I have everything and nothing to tell you. When you were born and for years afterward, I didn’t worry for what you’d achieve academically. Your mom and I would make that happen. We’d wield the law like a cudgel if we had to. We could make teachers teach you, and we knew you’d earn the respect of your peers.
What we couldn’t do was make other kids like you. Accept you, befriend you, stand with you in the vital social arena. We thought, What’s a kid’s life, if it isn’t filled with sleepovers and birthday parties and dates to the prom?
I worried about you then. I cried deep inside on the night when you were 12 and you came downstairs to declare, “I don’t have any friends.’’
We all wish the same things for our children. Health, happiness and a keen ability to engage and enjoy the world are not only the province of typical kids. Their pursuit is every child’s birthright. I worried about your pursuit, Jillian.
I shouldn’t have. You’re a natural when it comes to socializing. They called you The Mayor in elementary school, for your ability to engage everyone. You danced on the junior varsity dance team in high school. You spent four years attending college classes and made lifelong impressions on everyone you met.
Do you remember all the stuff they said you’d never do, Jills? You wouldn’t ride a two-wheeler or play sports. You wouldn’t go to college. You certainly wouldn’t get married. Now… look at you.
You’re the nicest person I know. Someone who is able to live a life of empathy and sympathy, and without agendas or guile, is someone we all want to know. It worked out for you, because of the person you are.
I would tell you to give your fiancé, Ryan, your whole heart, but that would be stating the obvious. I would tell you to be kind to him and gentle with him. But you do that already, with everyone you know. I would wish for you a lifetime of friendship and mutual respect, but you two have been together a decade already, so the respect and friendship already are apparent.
More from The Mighty:
Paul Daugherty is the author of “An Uncomplicated Life,” a memoir of raising Jillian. It’s available on Amazon.com and on Paul’s website, uncomplicated.life.