Colorado Springs to host ASF Walk
(COLORADO SPRINGS) — In celebration of 25 years, the Angelman Syndrome Foundation (ASF) will host its yearly walk the weekend of Saturday, May 18.
Colorado Springs will be one of 50 cities across the nation to host the ASF Walk. The public, individuals with Angelman syndrome, and their families, friends, and supporters are welcome to the walk to raise awareness and funds.
Since 1999, the ASF Walk has raised $19.5 million. This year, the goal is to raise $1.24 million. Funds from the walk will be used to find treatments and a cure for Angelman syndrome and to provide direct support to individuals with the syndrome and their families and caregivers. The ASF has funded 101 research grants totaling over $15 million.
Angelman syndrome is caused by the loss of function of a particular gene during fetal development, resulting in severe neurological impairment present at birth that lasts for a lifetime.
“As a parent of a child with Angelman syndrome, I know first-hand the beautiful moments and the immense struggles of raising an individual with this rare condition—and I want to do everything I can to help other families who are on this journey with us,” said Colorado ASF Walk Coordinator Liz Thompson. “I am looking forward to rallying the community to celebrate those that live with Angelman syndrome and support of the Angelman Syndrome Foundation, which has made an incredible difference in my family’s life and works to support everyone impacted by this disorder.”
The event will take place on Saturday, check-in starts at 10 a.m. and the walk begins at 11:15 a.m. at Freedom Elementary School.
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