The Poem I Imagine My Child With a Disability Would Write to Me

Samantha Isaacs

Who Would I Be

As you watch me grow, Mom,
There are things you miss, I know.
You miss the things I haven’t done,
the goals not scored, or races won.
The steps my feet have never walked,
The words my lips have never talked.

In my wide eyes you see my fear.
You take my hand and hold me near.
In the children all around you see, the child that I may never be.
Not so able, tough or agile,
Often tired and much more fragile.
You are my strength, my rock, my shield.

You see the tears I often cry,
And cry them with me, side by side.
Your heart is heavy for my trials,
But you wear it well, with weathered smiles.
I know you know, I am enough.
But I know the bad days can be tough.

You’re faith is never shattered,
Even when all around you, the pieces feel scattered.
You thank God for giving me to you,
but you’re sad for all I cannot do,
and not because you feel let down by me,
but you can’t help wonder who I would be.

Related:Parenting Kids With Disabilities Is Not Always About Having the Right Mindset

Who would I be,
If I could do what others do,
like ride a bike or climb a tree,
What I would give to run to you.
You think of all the things I’ll miss
My first dance, my first love,
My first date, my first kiss.

Yet here I am, just as I should be,
I’m not missing out on being me.
Do not fret or worry so
and make your spirit tired with woe.
And when those nights are feeling long,
Lean on me until you feel strong.

Hold my little hand in yours,
And peacefully we’ll pass the hours.
For all we have is one another,
A special child and caring mother.

Nothing matters more you see,
than seeing all the life in me.
I don’t need to be able to,
do the things that others do.
Please see the words I cannot say,
in the smiles I give you every day.
When I’m tired let me rest,
With my little head against your chest
and for that moment in that peace,
let your loving worries cease.

Related:When It's Almost OK to Stare at My Son With a Disability

Look at what I can achieve,
and celebrate me being me.
Do not grieve.
Please do not be sad because I’m not the child I never was.

Different isn’t less you know,
and you’re the one who told me so.
While some days will be hard to take.
And you’ll feel as though your heart might break, we’ll bounce right back, just like we always do.

Because you’ve got me and I’ve got you.

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