Life with Ehlers-Danlos syndrome (EDS) can be frustrating and isolating, especially on days when your pain and symptoms are in full force.
EDS is a genetic condition that affects collagen, a connective tissue that is found everywhere in your body from your joints to your ligaments and tendons, skin and organ tissues. The most common EDS symptoms include overly flexible joints, stretchy or loose skin and easy bruising.
Whether you’re struggling with physical symptoms or the toll EDS can take on your mental health, lifestyle or relationships, it can be enormously helpful to connect and laugh with fellow EDS zebras.
To add a little humor to your day, we rounded up some of the funniest and most relatable tweets about EDS. Not only do these tweets nail what life is like with the condition, but they’re a great reminder you’re not alone, and other people can understand just what you’re going through.
Check out the 16 tweets below, and let us know which one is your favorite in the comments!
I woke up and did my usual post-sleep joint pops and cracks to get everything in place. It’s not quiet.
Forgot that I hadn’t told my conference roommate about my #EhlersDanlosSyndrome.
[gif shows a puppet monkey looking shocked and a little scared] pic.twitter.com/ls8MiO4RuO
— Gabi Serrato Marks (@gserratomarks) July 11, 2019
Hello pain meds my old friend
I've come to need you once again
Because my joints are very unstable
Being pain-free is merely a fable
— hanagrace *call me Calvin* & Ice Bat (@hanagracemusic) March 26, 2019
— Maartje (@maartjeeds) March 5, 2018
— EDSWellness (@EDSWellnessSol) November 20, 2015
— EhlersDanlos Support (@Ehlers__Danlos) July 8, 2016
I feel like my life is a constant montage of that guy on SpongeBob yelling “My leg!” #EhlersDanlosSyndrome
— chronically chILL (@zwickster22) June 18, 2019
I did the smallest laugh and my shoulder blade subluxed… EDS got be living like rasputin in anastasia…#ehlersdanlossyndrome #chronicillness #chronicpain #invisibleillness #sublux #eds pic.twitter.com/vCTLYEvP2y
— micascholan (@MicaLaurenn) June 22, 2019
It’s the last day of Eds awareness month!!
Lol me trying to explain Eds. #EDS #EhlersDanlosSyndrome #EhlersDanlos #ChronicPain #Disabled #DisabledGamer #Gamer #GamerGirl #SupportSmallStreamers #Fatigue #ChronicIllness pic.twitter.com/gYaWhMfY1D
— Nicki Heiman (@Shukke) May 31, 2019
Every time I list "flexible" as one of my strengths in an interview/ cover letter/ etc context I cackle internally because it's a joke I share only with myself about being hypermobile #eds #EhlersDanlosSyndrome (it's the little things)
— theta (@thet_ari) July 17, 2019
— Dr m/z ( م/ز ) (@Dr_mz13) February 29, 2016
— Meep Matsushima (@transpacifique) June 23, 2019
You know you have #EhlersDanlosSyndrome when you dislocate your fingers pulling up your leggings. ????????
— Kirstie Black♿️ (@KittyDotty) July 14, 2019
Just been ID’d @Morrisons Elland because she said, I don’t have any wrinkles! ???? Cashier looked well awkward when she saw I was nearly 37 and I told her it’s because of a genetic condition that affects my collagen. #EhlersDanlosSyndrome #onlywrinkleypeopledrink?
— inky-paper (@PaperInky) July 18, 2019
#EhlersDanlosSyndrome #EDS is the most ironic disorder ever. “I’m going to give you delayed wound healing, frequent dislocations, easy bruising, and atypical scarring…oh yeah, and the joint laxity is going to make you SUPER clumsy so have fun with all those bruises and scars!”
— IsaJennie (@IsaJennie) July 13, 2019
— Trialia (@trialia) March 30, 2019
— Cynthia Wenger (@CynthiaW27) July 20, 2019
Connect with other EDS zebras 24/7 to give and receive support, advice and encouragement. Our community is here for you!
To read more about Ehlers-Danlos syndrome, check out the following stories from our Mighty community:
- 27 of the Most Ridiculous Ways People With Ehlers-Danlos Syndrome Have Dislocated a Joint
- 10 Common Symptoms of Ehlers-Danlos Syndrome – as Told by Memes
- How to Get an Ehlers-Danlos Syndrome Diagnosis
- A Page From My Life With Ehlers-Danlos Syndrome
- 8 Metaphors That Explain the Different Types of Ehlers-Danlos Syndrome Pain