Local author creates picture book with daughter to spread awareness on EDS

Matthew Baughman, The Leader-Telegram, Eau Claire, Wis.
Updated ·4 min read

Jan. 25—EAU CLAIRE — Pey Carter said a quick explanation of Ehlers-Danlos Syndrome "is like building a body with a glue stick instead of the superglue."

More specifically, Ehlers-Danlos Syndrome, or EDS, is a group of tissue connectivity disorders that can cause joint hypermobility, unstable joints, fragile skin and other symptoms depending on what area of the body is most affected. Although the condition is considered rare, the Ehlers-Danlos Society said doctors believe its prevalence is underestimated because some people do not get diagnosed or are sometimes misdiagnosed.

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