Megan Crowley

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    Meet Megan Crowley, the Rare Pompe Disease Survivor Trump Saluted in His Speech

    Megan Crowley attends a joint session of the U.S. Congress. During his joint address to Congress tonight, Feb. 28, President Donald Trump called special attention to one guest in the audience: Megan Crowley, a young woman with Pompe disease. Today is Rare Disease Day, and joining us in the gallery is a rare disease survivor, Megan Crowley,” said Trump, and the crowd sprang up to give her a standing ovation.